Petition to help Norwegian ME-patients

The petition is addressed to the Norwegian Ministry of Health and Care Services and below is an English translation – for our international supporters:

Link to the petition here.

 

 

The management for the National Advisory Unit on CFS/ME must resign.

“Even though the cause of ME isn’t yet discovered, the biomedical research clearly shows that ME is a physical disease. However, the management for the National Advisory Unit on CFS/ME still upholds the biopsychosocial model and mixes ME with other conditions. This leads to wrong treatments and inadequate help to ME-patients.

The National Advisory Unit’s views are based on research where the patient selection is a mix of different conditions such as burnout, depression or overtraining in athletes. The results of these studies can’t be transferred directly to ME-patients. ME-patients deteriorate and suffer from the treatments the advisory unit recommends, and their approach is harming the patients.

ME-patients are entitled to evidence-based treatments and we demand that the management for the National Advisory Unit on CFS/ME is replaced with a new one that:

– keeps up to date on biomedical research

– uses strict diagnostic criteria for ME and distinguish ME from other conditions

– provides correct and up to date information to the healthcare system

– takes ME-patients seriously and

– acknowledges that ME is a physical disease

ME-patients and their families lack faith in the management for the National Advisory Unit on CFS/ME.

We demand that the management for the National Advisory Unit on CFS/ME resigns.

 

Link to the petition here.

 

 

Thank you for your support.

 

Kind regards,

Nina E. Steinkopf

 

 

 

Én tanke på “Petition to help Norwegian ME-patients

  1. Tilbaketråkk: About the Recovery network Norway – and what ME-patients are up against | MElivet

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