The petition is addressed to the Norwegian Ministry of Health and Care Services and below is an English translation – for our international supporters:
The management for the National Advisory Unit on CFS/ME must resign.
“Even though the cause of ME isn’t yet discovered, the biomedical research clearly shows that ME is a physical disease. However, the management for the National Advisory Unit on CFS/ME still upholds the biopsychosocial model and mixes ME with other conditions. This leads to wrong treatments and inadequate help to ME-patients.
The National Advisory Unit’s views are based on research where the patient selection is a mix of different conditions such as burnout, depression or overtraining in athletes. The results of these studies can’t be transferred directly to ME-patients. ME-patients deteriorate and suffer from the treatments the advisory unit recommends, and their approach is harming the patients.
ME-patients are entitled to evidence-based treatments and we demand that the management for the National Advisory Unit on CFS/ME is replaced with a new one that:
– keeps up to date on biomedical research
– uses strict diagnostic criteria for ME and distinguish ME from other conditions
– provides correct and up to date information to the healthcare system
– takes ME-patients seriously and
– acknowledges that ME is a physical disease
ME-patients and their families lack faith in the management for the National Advisory Unit on CFS/ME.
We demand that the management for the National Advisory Unit on CFS/ME resigns.
Thank you for your support.
Nina E. Steinkopf